"Think how you can, not why you can't." - Dr. John H. Cox -

Wednesday, May 12, 2010

For "Brostrom Survivors"

I had said that one of the /many/ reasons for this blog would be to hopefully help someone else who is having the same procedure done.  So, as boring as it might be for the rest of you, this post is for impending Brostrom procedure patients and "Brostrom Survivors" as they are referred to on many websites and forums.

At six weeks post-Brostom, here are my thoughts/observations/suggestions:

  • NEVER, throughout this journey thus far, have I had anywhere near what I would call "excruciating" pain, so if that's what you're worried about, don't (understanding that everyone tolerates pain differently).
  • I don't recommend wasting money on cast covers for the shower.  They don't work and it's not worth the money.  In my case, I was able to take a shower after 12 days - you can easily get by on baths and baby wipes and hair washing in the sink until then. 
  • Use the money for shoes and clothes instead.  This is NOT an exaggeration - you need to get proper clothing and shoes IN ADVANCE.  I was not prepared for this at all.  When they say "comfortable clothing" - I'd say "ultra-comfortable."  For women, anything that slips over your head!  Loose, comfy nightgowns, shifts, sundresses if it's the right time of year (I got lucky).  A good quality pair of athletic shoes are a must, even if you hate them like I do.  If nothing else, you will need them for once you get your boot off.  Obviously, ankle stability is key!  New Balance seems to be the best choice (after hours of research).
  • If at all possible, get crutches in advance.  Chances are, you already have them, if you're at the point of having this surgery.  It may be called a "walking boot" - and as I understand it, many doctors are now eliminating casts and going straight to the boot - but at first it's too uncomfortable to put weight on your foot even in the boot, so I used crutches even from room to room inside the house, for at least a week.
  • I considered, but never purchased, a shower stool.  Many post-op patients and doctors recommend it.  I was able to get by without one, but had to be very careful.
  • 100% pure aloe and/or essential oils - once the boot comes off, there is all sorts of "stuff" to deal with that you probably never thought of, e.g., a whole leg of ingrown hairs, peeling skin, bone spurs, bruises, and of course, a scabby, itchy incision site.  Gentle massage stimulates cell regeneration and speeds healing!
  • Just when you think you can't take it anymore...you will turn another corner and have a major healing "growth spurt," as I like to call it.
  • Grant yourself any/all simple pleasures that bring you joy:  for me, this meant:  linen spray, lavendar laundry detergent for endless mounds of dirty linens, ice cream, a very sturdy and comfortable chair, all the books I wanted to read but never had time to, etc. etc.
  • KEY:  BE KIND TO YOURSELF!
 6 weeks and I am very happy with the progress so far!

23 comments:

  1. Looks good Louise

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  2. Ouchy! Sweetheart!
    What a precious gift you are. I'm sure anyone who is going through this procedure will be so grateful for your insight.
    I will be sending 'healing/love' energy to your glorious ankle.

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  3. Thank you so much for this blog. I recently met with my orthopedic surgeon and, after 16 years of instability and pain, he's decided to proceed with a Brostrom this fall. I'm looking forward to the long term benefits, but I'm nervous about the surgery and recovery. I've read your blog from beginning to end and am thankful for the wonderful insight!!

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  4. Steph - I am so glad you found the blog and have been able to gain some insight from it! As you can see from the dates, I am now 13 months post-Bostrom, and I don't have a single regret. My ankle is very stable and I hardly ever have any pain at all. Occasionally, if I overdo it, I will have a little swelling, but that's about it! In retrospect, the surgery was a piece of cake. The recovery was a little bit more difficult but still tolerable and well worth it! All the best to you for a full recovery and many pain free years ahead!

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  5. If you don't mind, I have one quick question for you. Were you having much pain prior to the surgery? Or was your main issue instability? Did you find the surgery helped with the pain? Thanks again!! :)

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  6. Hi again, Steph. Oh myyyyyyy did I have pain! Throbbing. Burning. Pulse in your ankle kind of pain. I could not even put my foot under the sheets at night. It was terrible. And, I must say, IMMEDIATELY after the surgery - the very same day - I could "feel" that my foot was fixed. I mean it. Strangest thing. I did have pain afterwards - to be expected - but it was a totally different kind of pain and much more tolerable. Feel free to email me at cammiesmom89@comcast.net if you want to chat some more, or you can look for me on FB ---- Tina Marks. Take care. Blessed freedom awaits you!!!!

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  7. Thanks for this blog!! I am almost two weeks post op from a Brostrom. I am supposed to go get into a walking boot tomorrow...kind of excited to be crutch free hopefully but still nervous...can't imagine putting weight on it yet...any advice?? How long did it take you to get to "normal"?

    Thanks!!-Renee

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  8. Hi Renee! Again! Just when I was thinking this blog was no longer serving anyone and considering deleting it, here you are! :)
    As far as your question above, some may call me "chicken" but I ALWAYS err on the sides of caution and comfort! Your body knows its limitations and what it needs. Just listen! :) Feel free to drop me a line anytime at cammiesmom89@comcast.net or maybe like Steph and I have done, we could connect on Facebook sometime. Best of luck with your recovery!
    Tina

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  9. Excellent suggestions. I am 3.5 weeks post-op, but went from a plaster splint for 2 weeks to a full fiberglass cast for another 2.5. Then I'll go into a walking boot. Comfortable clothing an a good shoe (while non-weight-bearing) is definitely a must. Also, if you find yourself in my position (non-weight-bearing for 4.5 weeks) you might consider a good set of crutches. I've been very impressed with the new MobiLeg crutches. No arm pit chaffing and less wrist pain.

    I'd certainly encourage you to keep this blog up. This post alone has good suggestions for anyone facing a Brostrom procedure.

    PK

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    1. Thanks for your comment and additional suggestions, PK! Sounds like your recovery is coming along nicely. Yaaaaaay for all of us!

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  10. Heya! I am scheduled to have the surgery in 3 weeks time. I am only getting ligament repair without an arthroscopy (despite what another surgeon and my sports medicine doctor suggested). I get pain in my ankle most days, but not from the ligaments (I think from the cartilage).
    I was told I was going to get 1 cast for 6 weeks (put on the day after the surgery to let the swelling go down.) I'm surprised I'm not getting an aircast or something.
    I was wondering what stage of walking ect you were at 11 weeks post-opp as I have a week long fieldwork for my course at Uni (geology, so standing all day long outside).
    thank you so much!

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  11. Hi Izzie! Thanks for visiting and sharing your experience (so far) as well! I never imagined, when I was documenting my journey, that 3 years later people from around the globe would still be finding my blog. Awesome! :)

    To be honest, I myself couldn't remember where I was at 11 weeks.....so I started scrolling through to see what I could find. If you look through the posts in May (maybe you already have) I was doing really well...walking around in the yard...taking pics...even testing out my car again! My surgery was April 1st, so that's a really good sign! I see NO complaints of pain. Another really good sign! And, very few posts in June (which means I was out and about). Another really good sign! :) As I recall, I didn't work or drive any significant distance for a full 12 weeks...then it was baby steps. My ankle let me know when I overdid it (and frankly, still does.....that's another/different story as I have had subsequent injuries due to another car accident).

    Honestly, having the Brostrom procedure was one of the best decisions I have ever made, and I think it will be for you too. The HORRIBLE pain was immediately subdued after the surgery. My ankle felt STRONGER immediately...more trustworthy. If you are relatively young and healthy and following the instructions, you will NOT be sorry. Above all...and regardless of what ANY medical professional advises...LISTEN TO YOUR BODY. YOU know it better than anyone.. RESPECT IT. HONOR IT. BE KIND TO IT.

    Peace and many blessings to you! All will be well!

    Tina

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  12. Thank you so much! I have read your blog, so its reassuring to see that you were up and about so early on!
    Ive been struggling with an unstable ankle for nearly 2 years now, having had hundreds of physio hours and braces ect! So I am definitely looking forward to being able to run again one day.

    Thank you again!
    Izzie

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  13. You will! You will, Izzie! Just FYI ----- AFTER your release from the doctors and their advice, you may take it upon yourself to wear a brace when you are running, just for good measure. My friend, Steph (you may see her comments around in the blog) has experienced a FULL recovery and doesn't have to wear anything at all ----- I am much older than Steph, and have had some injuries post-Brostrom (and unrelated) so I have to be really careful. The ASO braces are by far the best. The lace-up one is better than the pre-laced one (although it takes a few more minutes). Also, the aircast sport has saved my life......but again, you may not need anything at all.

    Good luck, friend!

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  14. This is a great blog! Thank you for posting it! I currently 11 weeks post brostrom ( scope and chip stuff too) and still so exhausted . It's true how you can feel the injury being repaired but then you have to deal with the post op recovery --- kind of like getting torn apart and having to start from scratch again. The recovery is definitely the hardest. Reading your blog is encouraging to me. Makes me feel better about how tired I am and how weird my walk is as I am just getting started with the PT. thank you

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  15. Awesome, Deirdre! 11 wks. post-op is a GREAT place to be! It only gets better and better from here on out! Congrats! :)

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  16. Hi there,

    I'm 23and have had loose ankles my entire life. I am considering correcting them one at a time. I don't experience any pain and never sprain my ankles (since they're so loose!) but I teach yoga for the university. I know my situation is different than yours, but I'm just curious at what point you were able to practice yoga again?

    Thanks!
    Jacie

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    1. Hi Jacie! It would probably be much different for you, since you don't seem to have any actual damage like I did, and you are much younger so would heal quicker. I only know MY experience and am certainly no expert, but I would allow about 3 months' time for each ankle. Would also suggest delaying surgery until absolutely necessary. Have you tried wearing sports braces? MANY athletes wear them whenever they practice, just for stability. ASO braces are the best, and there are many options to choose from. Good luck! :)

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  17. I had the Brostrom Procedure done and they went in orthoscopically and took out bone fragments.. I am at 2 weeks post op today and just started walking on with my boot 2 days ago (with some help from my crutches still). How long did you sleep with your foot elevated for? I have been doing it since the surgery but last night every time I lifted it up it started getting numb and tingly and I had a lot of pain where they went in orthoscopically. As soon as I took away the pillow it went away but that was the first time it ever felt like that.

    -Tara

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  18. Hi Tara!!!!!

    I wish I had a good solid answer for you......as you can see, it's been 4 years since my surgery.......I don't remember exactly how long I slept with it up, but it was a LONG TIME. It seems like my foot was elevated forever. I had to work alot with my hip on that side to make sure it didn't get "stuck." BUT.......every person is different.......and alot depends on age, the shape you were in before surgery, etc.......if your surgeon has a P.A., I would call and ask them. also feel free to browse around in this blog.......so many kind people have commented from all over the world......you may find answers in some of their comments as well! Best to you!

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  19. Thank you! I was finally able to walk without the crutches yesterday... so liberating haha :). I am lucky I am 26 and am in good shape. I believe after my next post op on april 1 I get the shoe and then a month after that i start PT... I think that is how it goes... I am really nervous for PT though because my ankle is realy stiff right now. How long did it take for you to feel completely normal again? I was told 6 months but then I see some people saying 12-18 months! Ugh I just want to run again.

    -Tara

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  20. Hi Tara,

    The P.T. was actually quite a relief to me. Because of the stiffness you are talking about, I couldn't wait to move my foot around. I had no pain in P.T. AT ALL.

    Unfortunately, I don't have a valid response to your question about the length of the healing process. First of all, I was 45 when I had the surgery. The older a person is, the longer it takes the body to heal and form scar tissue. I was told at least 12 months for full recovery, and was doing great with that until I had a second car accident 8 months into my healing journey. THAT is a different story entirely. However, if you read some of the other posts and comments here from FAB people all around the world, you will have alot more hope ;)

    Blessings,
    Tina

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  21. I am day three following my Brostrom/OCD debride. Thank you for posting this page, it has been very helpful during this time. I am 32 and probably should have had the repair 20 years ago after several ankle roll outs and several summers on crutches. I started a group on Facebook called Broström Survivors. I hope to hear more about each of your stories, tips and experiences!
    <3
    Jamie

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